fluffy will be 11 in a month. i’m glad to be done with 10. 10 has been a hard year in our house. It started a few months before 10 arrived. it’s now a month before 10 leaves. who knows what 11 will bring–maybe more? maybe less? maybe the same?
it was just a year ago that we tried medication for the first time. the guanfacine knocked him out like a sleeping pill. no good. we tossed that out. the 12.5 mg of zoloft did nothing. at 25 mg, it seemed to help. but did it? hard to say. it seemed to help with a host of things that stem from the anxiety. at 37.5 mg, it was even cloudier. some days, it seemed no different than 25 mg; other days, it seemed to make him more agitated. so we dropped back to 25 mg. but then months past and we honestly couldn’t say that the 25 was doing anything, and if that’s the case, why give it at all? some might say, you ought to have gone even higher, tried 50 mg, 75. 100. maybe. maybe. the whole thing makes me feel sick inside, to tell you the truth.
so. nothing since september when we began working with a new (ostensibly) amazing doctor. weeks and weeks of intake. i won’t go into what happened at the end of that ordeal. we never even got to the medication trial so, thankfully, fluffy was spared that roller-coaster. but the boy needs something. that’s clear. maybe that’s what this whole year has been about, making it crystal clear to us, his parents, that, despite all the very real concerns about psycho-pharmaceuticals, too much of the time, fluffy operates in a fucking hailstorm, poor guy. from where i sit, it looks like a white-out in there, in that beautiful head of his. he needs some help, some all-weather gear, some special goggles. some damn thing.
yesterday was a new day, a new month, a new year. it was also a hard day in this house. i can’t say we dealt with it perfectly. the aggression. it’s hard. in a multitude of ways. i can see that fluffy’s using restraint. he is. but simply put, i don’t like being poked and hit, punched and yelled at. i become weary. i know it’s awful for fluffy, too.
i did a bunch of clearing out. the tree came down. the decorations put away. it was a fine holiday but i’m all done it, ready for a new beginning. i found the thanksgiving turkey wishbone behind the dish drainer and after dinner, fluffy and i each made a wish.just before we gave it a yank, fluffy said, shall we tell our wishes?
sure, i said.
i got the bigger piece. i wanted him to get it, to get the bigger side and his wish.
maybe we both wished for the same thing, i said.
what did you wish for? he asked.
that the new doctor will find a medicine that really helps you feel more in balance, i said.
i wished for a solution to the hitting problem, he said.
we looked at each other. he pointed first to his head, then to mine and beautiful grin appeared. “hive mind, mom!”
Yup, start of another year. If it’s not one thing it’s another, but lots of things disappear as other things pop out – the bending fingernails backwards is gone, so we celebrate our little victories.
First, I’ve missed you. And I’m so glad you’re writing here again. Second, I know. I hope you and Fluffy get your wishes. I will wish for it too. xxk
The wishbone story is a beautiful one. Thanks for telling it. love you all
I am sorry
Life for our kids and us can be tough. I wish for you both to find a solution and that 2012 will be a good one for your family.
Kind regards
Di
Nice to read from you again. I’ve missed you. I hope in 2012 you find that balance. I know all about the aggression. We’re in a good spot here, thankfully, but when the poking and hitting starts up – it’s the scariest thing.
I hope it really was just a bad year, and that you can return to regular blogging.
In case this might be useful… You mentioning the almost-10-year-old start to his violent meltdowns nudged me to remember that mine started at around that age as well. I eventually found that a low dose of gabapentin (100-300mg at bed after/before an average day) makes a huge difference.
Missed you.
Ugh. I hope things get sorted soon. Anxiety is a bitch. I must admit that I was happy to see you post something.
Oh Kyra, I’m so sorry that it was such a rough year. I hope the new doctor DOES find something that works. Thinking of you, my dear.
Kyra, I’ve missed your writing, too. You inspire me on so many levels- by having the courage to take the medication plunge (still too chicken for that here, and NOT encouraged by the nagging school personnel), by taking the time to make well-thought out decisions, by always doing what you think is right (no matter how hard that is). I’m praying that Fluffy’s 11th year is a breakthrough one for you all- and that you share it with us so we can celebrate. Just keep swimming!
Kyra
I miss you so
Love your writing
I really hope this year is breakthrough
Breakthrough awesome
i made my own wish, just now. i broke a mental wishbone, and made a wish for you…i hope it comes true.
you: missed.
curious about your writing, i hope projects are happening, you have a gift for communication. take care, kyra. more soon.
m
ive missed you! i saved your bookmark from way, way back…and today, before i head out for our 2nd appt with a new dr, with my 12 yr old son, i decided to check in….funny how timing in life is….after 6 years or so and a very brief trial, we are looking into meds again….so it was moving to read your entry today..THANK YOU. you are an amazing mom. dont forget it.
Hi Kyra,
I just wanted to share this video with you: http://youtu.be/zMIlJk0et5A. I found it very inspiring.
Warm regards,
Bart
I hear you, and miss you too.
Meds, the reasons we pursued them for Leo (similar to what you’ve described), and the process of finding the right Rx was one of the most heartbreaking periods we went through as parents — like you, witnessing our son needing help so desperately, not having any clear guidelines as to how to give it beyond Leo’s psychiatrist’s list of “things that have worked for other kids like your child but we don’t know why.” Maddening, better now, still not entirely resolved.
Thinking of you all, hope you’re closer to answers now.
My best wishes to you and fluffy….my 15 yo in on the spectrum and for the last two years have wrestled with increased anger and violence. He’s bitten me to the point of leaving scars and hit me to the point of black eyes and bruises. After each episode he’s very apologetic and morose at having done this. We’ve swept through an array of meds and treatments. Right now he’s taking Seroquel and that, combined with an extensive hospital stay has helped him(and us) turn the corner…he is more in control, less prone to violence and better able to process his feelings. It’s still not picnic, but we are in a much better place than we were last year. I pray that you two will find a balance point. Love and prayers…..
I would love to help your son find his solution, but I live a looong distance away. I work with children with ASD using Davis Autism Approach http://www.davisautism.com. I’ve watched child after child learn so much so fast that it still amazes me. When they begin to understand their world, that swirling snowstorm of confusion and the resulting anxiety lessens dramatically.
I, too am wishing for you both. Maybe all these wishes made with so much heartfelt energy will produce something better than you expected.
Kyra – I understand when you say it’s been a rough year I hope for a better year for your son and you. Meds are a tough puzzle to figure out. Thank you for writing honestly.
Dixie
I really like this blog. It’s my first time here. My grandson will be 9 next month. He has been on medication for a while, and I know it helps, but nothing fixes the unpredictability of his everyday life. He just screamed at me and called me an idiot and moron because he accidentally burned his finger. I know he doesn’t understand that I can’t prevent him from getting hurt, but he expects me to just the same. He’s very emotional, cries at school when the teacher tells him no, and I’m anxious all the time. I don’t know how to make either of us feel better.
Please keep writing.
I think that age is about the start of the hormone raging years. My son, now 14, is still dealing with some of that, but it has calmed down. And he really does feel bad for the behavior later. He now will apologize without prompting-complete with tears and words of remorse.
I just hope that somewhere along the line the boy gets some motivation. He can’t sit around reading history books all his adult life. Or can he?
Some years with kids are worse than others-or better than others. FOr my daughter 7-8 seems to be the dreaded number!
Kyra-Are you still using the Nurtured Heart Approach with your son? I’m an RDI Consultant who also is a Nurtured Heart Advanced Trainer. Loved reading your Nurtured Heart posts….links to them were posted recently on the RDI Learning System website.
I’m glad you found a good doctor. Finding the right medication can be a frustrating thing, especially with a child whose needs are constantly changing. I hope 11 turns out to be a great year for Fluffy!
I hope you post again. You give me hope
Thanks for keeping us posted and for sharing your inspiring journey with others. Here’s a recent video that makes me smile: http://youtu.be/wcMgrKUqR9o
Thanks for sharing. My son just turned 12, he had adhd combined, and whoa has it been one hell of a year!
http://www.justasinglemomblog.com
I’m so sorry that I have been so absent in the past months that I missed this post of yours! The anxiety and outbursts are so very, very hard. I wish that you could see our psychopharm guy in NYC. He is awesome, lovely, and will work with you until he can get it right.
You know we’ve tried them all (well, not all, but it sometimes seems like it): Zoloft, Paxil, then the Seroquel (for 1 day) and the Abilify (for 1.5 days) and finally settled in with Prozac for the time being. It really helps our girl. She still gets anxious. She still bites her nails and picks at them and other things, but she can settle herself down. And sometimes the anxiety increases, so we have to up the dose, but we’re still at a quite low dose relative to our girl’s height and weight.
But all of our kids are different. It’s one of the hardest things that there are so many different flavors of autism, pdd, whatever. Missing your writing and sending you hugs from Autism’s Edges.