this is when it gets hard. when a few days go by and my initial bursts of energy begin to wane. i’ll reconnect to the blog! i’ll write every day! i’ll…i’ll…uh, wait, wha’?
so. i’m logging on to combat the inertia. to dash something off. even though i don’t have time. even though i have nothing clear in mind to say. hmm, let’s see what comes up. oh, here’s something:
1. a few hours ago i nearly had a fist fight with a mean mommy at vision therapy. she was rude to fluffy and rude to me. i opened my big mouth and said, what’s the matter with you? why are you mad at me? what did i do to you? i wished i had made a crazy gesture inside the private room of my mind and glued my lips shut in the very public waiting room of the real world. there was another mommy in the waiting room and she chimed in. it’s true! she said, jumping to my defense. i’ve been watching the whole thing and you’re taking your anger out on her for no reason! for a second, i felt pleased. vindicated. ha! take that! words were thrown around like a cafeteria food fight but very quickly i felt icky. i’m a confronter by nature but i don’t like it. i like when blue birds are flitting about and everyone is drawing smily faces and swapping recipes. i don’t know what this woman’s story is, was, may be. i willed myself to stop and seconds later the eye doctor called us in and saved the day.
2. she gave us the results of fluffy’s vision re-test and tadaa! after 6 months of weekly visits and daily eye exercises that have been tedious and grueling for fluffy, he has graduated from vision therapy!
3. i wished i could have said something to the mean mommy, something simple and expansive without getting into details like sorry about all that but by the time we left the place, both women were gone. fluffy and i went home, he to E. the magnificent sitter, me to my messy desk where for the last two hours i’ve been trying to get work done in between trips to the internet to read up on various things, none pressing. casey from american idol, for one. he’s got my vote. i love that james durbin, the young man with aspergers and tourettes, the one with the sweet fiance who leaves encouraging notes all around their house, the one with the sweet baby gurgling on the carpet. ‘he’s got an unfair advantage,’ my friend says. ‘autism. you know, perfect pitch, absolutely no self-consciousness on stage.’ which goes to show you how individual autism is because in her house, it’s true. her son has perfect pitch and a truckload of performance gifts and not a shred of awkwardness on the stage, dancing, singing, acting the lead in show after show and he’s all of ten. but in my house, animals howl when fluffy sings and the mere mention of acting something out is so agonizingly embarrassing, he might sock you in the nose.
4. someone forwarded a report on radioactivity. apparently, increased levels of radioactive iodine have shown up in massachusetts rain water. i, in turn, forwarded the article to a friend of mine and she wrote back “Bummer. I’d like to take all the nuke owners, who lie about the risks and cut corners on maintenance and safety, and air drop them into the reactor core in Japan. Then we can study them and see how safe it all is. Also, all owners should be required to live on the complex with their reactors and children, and eat only food grown on the property.” these comments struck me on many levels: (a) funny because she was clearly being outrageous, (b) frustrating because it would be impossible to enforce such a thing yet its outlandish nature ought to be enough for everyone everywhere to begin dismantling every colossally hazardous nuclear facility in existence, and (c) comforting because, well, maybe she would have yelled at the mean mommy in the waiting room too.


sorry about the argument, that woman sounds awful. ugh. not sure what she took away from the scene, but i like that she that now knows: if she shoots her mouth off, some people? they respond. i’m hoping she took a little caution away with her, a need to be more careful with her reactions. i don’t know, maybe not. some people just suck.
you, though: wonderful. you and your fluffster: good ones, through and through.
very pleased to see your words here.
I was gonna write to tell you about a comment I heard the other day that the situation in Japan actually shows how *safe* nuclear power is – the second worse earthquake in the history of mankind, less than ideal circumstances in the plant, and the results have not been all that bad. But then I couldn’t remember the exact details of the comment. Interesting perspective, anyway.
Mostly, I’m glad you’re blogging.
Kyra, I didn’t know that James is an Aspergers man. Wow. It didn’t even occur to me. Am I slipping or is show biz a great outlet!
I just love it when you write!
I just watched a one-man show here in Los Angeles that centered around this guy’s anger or lack thereof. It was hilarious — a Buddhist, he knows to let things go, to know be angry, but he often is and admires those who can really express their anger. I think where he came out, though, was being mindful of anger. It was far more complex than I’ve just described but perhaps it’s food for thought.
(And I think you did a fine job of writing something when you felt no inspiration)
i want to rumble with the mean mommy on your behalf. except you had a protector.
i have a feeling that blaming it on the weather might be reasonable today, too.
I’m a James “man” all the way, despite the unfair advantage
. I mean, seriously, how can you not see that facial twitch and not just melt!!! (Yes, we ASD mommies are an odd lot….) Although I DO think that Casey is outrageously amazingly talented as well. But I just can’t bring myself to pull for someone other than James.
Oh, and give me 5 minutes with the mean mommy….
I relate to your story. Guess we have some of the same “training”! I now like the calm better too.
Ok I couldn’t help but relate to your “Idol”gazing. The Casey/James and Jake/Fluffy comparison has really been on my mind not because Fluffy is a singer/performer or that Jake is exactly like Casey but because right in front of us there are these two beautiful young men who are living their dreams. They’re up there staying true to themselves and presenting the world with their authentic selves, one of them seemingly neuro-typical (is that the politically correct phrase now?)and one of them with Aspergers/Tourettes. What is so wonderful to watch as a mom of a young man who is going through a difficult time, a mom of a VERY sensitive, highly talented performer who is not expressing his talent at this time because he is in too much emotional/spiritual pain, is that I’m starting to see that the struggle is a big part of how he will get to a better place. The struggle will bring him more knowledge about himself and more tools to deal with life. I don’t know Casey’s whole story but his talent and demeanor are very much like my son and when I watch him perform I’m filled with such hope for Jake. We know a little more about James and his story and what brings me to tears sometimes when I watch him is that he is being his authentic self and is showing the world his “vision” and the world is loving it!!!! He’s making no apologies for and has accepted his diagnosises and he’s gone through some amazingly hurtful and terrible times…he’s struggled and remained true to himself, found people who support who he is and has nurtured his passions.This fills me with love for Fluffy and all that he is(not that I didn’t feel it before but this is where the comparison comes up). I know he will have his struggles…I guess we all do…but because he too has been with parents and people who support who he is and nurture his passions I believe he will live his vision with gusto!!!! It seems the hardest part as their parents is the faith that they will be ok actually fabulous and thriving even through all their struggles and pain. You know how hard letting go has been for me, but I’m trying! So watching these amazing two young men, Casey and James has reminded me so much of our beautiful boys…Jake and Fluffy.
This was a great season for reality tv to show our son “Einstein” who has Aspergers between James on American Idol and Zev on the Amazing Race.